- https://www.youtube.com/watch?v=Uv0eRev9nZk
- https://www.neurologyadvisor.com/neuromuscular-disorders/personal-insight-into-primary-periodic-paralysis/article/755780/
- https://www.periodicparalysis.org
- https://www.invitae.com/en/uncoveringperiodicparalysis/
- https://rarediseases.info.nih.gov/news/609
- https://globalgenes.org/toolkits/transitioning/young-adult/
- https://engagedpatients.org
- https://www.keveyis.com
- http://hkpp.org/node/181
- https://youtu.be/1oxz8jCRcB8
- https://rarediseases.org/rare-diseases/andersen-tawil-syndrome/
- http://hkpp.org/Long%20Exercise%20Text%20CMAP
- http://www.cbc.ca/news/health/patients-involved-in-all-aspects-of-medical-research-1.4016312
- http://www.ted.com/talks/thomas_goetz_it_s_time_to_redesign_medical_data
- http://www.ted.com/talks/dave_debronkart_meet_e_patient_dave
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3824221/pdf/415_2013_Article_7025.pdf
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3476862/pdf/1128-2460-31-126.pdf
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3492909/pdf/ene0019-1470.pdf
- http://hkpp.org/node/141
- http://www.paralisis-periodicas.es/
- http://paralisis-periodicas.123miweb.es/
- https://docs.google.com/file/d/0B-savOlQA6QCcUl6UEl4ZlZrMWc/edit?pli=1
- https://docs.google.com/file/d/0B-savOlQA6QCRVJoZ0FHQVdKV28/edit?pli=1
- http://www.trustortrash.org/#
- http://youtu.be/gI-0CwCMT28
- http://hkpp.org/node/157
- http://hkpp.org/node/151
- https://drive.google.com/file/d/0B-savOlQA6QCMjQwMTljYzAtMTIxNS00ZThmLWE3MzMtYmQ1MjU5YjBjZGQ4/edit?usp=sharing
- http://hkpp.org/node/179/
- http://www.accessdata.fda.gov/scripts/drugshortages/default.cfm
- http://www.apneaboard.com
- http://www.twitter.com/hkpp_org
- http://www.youmeandmg.com/about/deborah-cavel-greant
- http://www.hon.ch/HONcode/Conduct.html?HONConduct693761
- http://www.healthonnet.org/HONcode/Conduct.html
- http://www.geneticalliance.org/
- http://hkpp.org/contact
- https://www.drupal.org
domingo, 8 de septiembre de 2019
Periodic Paralysis Intl. |
Suscribirse a:
Enviar comentarios (Atom)

No hay comentarios:
Publicar un comentario